People Living with Dementia
Population Outcome: People Living with Dementia in Suffolk and North East Essex Age Well
Early diagnosis, and the best quality treatment, care and support are essential if everyone with dementia in Suffolk and North East Essex is to stay well. Awareness of signs and prompt access to testing enables early diagnosis. High quality information, treatment and care means people and their carers and families can achieve and maintain a good quality of life.
Dementia Prevalence Data
- Latest census showed 257,300 aged 65 or over in SNEE – almost 1 in 4. In 20 years time this will have moved to 1 in 3 people
- As our population is ageing, numbers of our people living with dementia will increase
Dementia Diagnosis Data
Diagnosis rates have reduced in recent years as an effect of the COVID-19 pandemic
Living Well With Dementia
Data about Being Supported Well with Dementia
People living with dementia should have access to safe and high quality long term care services
The Story Behind the Outcome
Equity within dementia services
Dementia - early support
Dementia - finding support
Dementia - Julia's Experiences
Dementia - Peter and Teresa's Experiences
The Dementia Statements
- We have the right to be recognised as who we are, to make choices about our lives including taking risks, and to contribute to society. Our diagnosis should not define us, nor should we be ashamed of it.
- We have the right to continue with day to day and family life, without discrimination or unfair cost, to be accepted and included in our communities and not live in isolation or loneliness.
- We have the right to an early and accurate diagnosis, and to receive evidence-based, appropriate, compassionate and properly funded care and treatment, from trained people who understand us and how dementia affects us. This must meet our needs, wherever we live.
- We have the right to be respected, and recognised as partners in care, provided with education, support, services, and training which enables us to plan and make decisions about the future.
- We have the right to know about and decide if we want to be involved in research that looks at cause, cure and care for dementia and be supported to take part.
Dementia - impact of Covid 19
- 84% of carers reported a decline in the cared-for person’s health and wellbeing in the past year, 27% saying the decline was unmanageable.
- The ability to remain cared for by a partner at home means a significant delay in reaching the time when the person needs admission to a care home – around 2.5 years longer at home.
- During Covid that point was reached quicker due to inability to access care and support for themselves and the person they cared for.
The Society recommended that everyone diagnoses with dementia has access to a dementia support worker and a ‘stepped’ model of care where people can
access more specialist services as their needs become more complex, as well as
culturally competent services.
- Latest census showed 257,300 aged 65 or over in SNEE – almost 1 in 4
- More than 72,000 live alone
- 1 in 5 aged 65 and over in SNEE are estimated to have a limiting long term illness that limits day-to-day activities a lot
- 17% of SNEE population aged 65 and over predicted to have dementia
References & Further Reading
What we know matters and why
|I am diagnosed early||Early diagnosis enables me to access treatments that prevent decline and maintain my quality of life.|
|I, and my carer and family, receive high quality care||Receiving compassionate care from staff trained in dementia means I am safe, supported to maintain my health and wellbeing, and independent.|
|I can live a full life with dementia||Having the information I need, in the most accessible way for me, on support services, welfare benefits and adjustments means I can live independently and well. |
Being part of in my family, social networks and community means I feel understood, respected and included.
|I am treated as an individual||Treating me, my carer and my family with dignity and respect, recognising my culture, characteristics and life circumstances, means my care and support is inclusive, sensitive and responsive to my needs.|
|I am seen and heard||Recognising that I am a whole person means I am not defined solely by my diagnosis and am treated with respect.|
Giving me choice and control means I, and my carer and family, are respected as full partners in my care and to make decisions about my future.
How will things be different in Suffolk and North East Essex
|We will co-produce raising awareness of the early signs of dementia and the care and support available.||We will co-produce ways to ensure all health and social care services are understanding and flexible to meet the diverse needs of people with dementia and their carers.|
|We will enable people with dementia to have access to the treatments, support and opportunities to socialise that prevent deterioration in their health and maximise independence.||We will co-produce ways to ensure all health and social care services are understanding and flexible to meet the diverse needs of people with dementia and their carers.|
|We will encourage all communities to be dementia-friendly and inclusive.||We will support people to maintain their health and wellbeing before, while waiting for, during and after treatment to help them stay well and recover well.|
|We will co-produce ways to ensure all health and social care services are understanding and flexible to meet the diverse needs of people with dementia and their carers.|
Case Studies – how we are making progress across Suffolk & North East Essex
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Publish your case study here