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People at the End of Life

Population Outcome: People at the End of Life in Suffolk and North East Essex Die Well

Flexibility, choice and control over their care, and support for those closest to them, are essential for everyone in Suffolk and North East Essex at the end of their life. Early identification of end of life means people and their carers and families can plan and access the right support for all their needs. High quality, sensitive and compassionate care means people have the right support in the right place for them.

Indicators

Barometer Measure

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Data about Place of Death

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Data about Deaths in Hospital

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The Story Behind the Outcome

Lived Experience

Films

In the name of love

Muscular dystrophy care

Reports

Community Assett Mapping - Die Well End of Life Care

This report presents evidence that people from deprived areas were 18% more likely to die in hospital, rather than at home or in a hospice and that they were likely to have 20% more emergency admissions in their last weeks of life.

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Healthwatch Suffolk Research about end-of-life care in Suffolk and North East Essex.

Peoples experiences about of end of life care in 2020/21

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Compassionate Communties Report and Evaluation

“Compassionate Communities” is a project developed and delivered
at a community level, through the Peninsula GP practice, in East Suffolk.

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Healthwatch Essex visit Old Park Meadow

A natural burial ground, set in a beautiful area of natural countryside

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Quotes

A caring hospice environment

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Funding care

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Preparing for end of life

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Delivering community-based healthcare

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Published Evidence

Demography and end of life

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Rates and Causes

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Care Homes

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LGBT experiences at end of life

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Spiritual needs at end of life

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Inequalities in access to hospice care

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Quality of care at end of life

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Deaths in hospital

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Further Reading

Further Information

Useful Organisations

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Our Ambition

What we know matters and why

What matters?Why?
I want to be able to prepare for the end of my lifeI need time to think and plan for my end of life.

Timely identification of end of life means I can discuss with those closest to me my choices and wishes.
I want to receive high quality care Professionals sharing my plan with me, my carer and family (including my chosen family), and each other, means care is joined up and meets my needs.

I deserve the best care whether in my home, hospice or hospital, including effective pain relief when I need it.

Flexible care gives me confidence my care can adapt as my needs and choices change.
I want information on what to expect and my choicesClear, sensitive, compassionate communication from professionals, giving me time to ask questions, helps me understand what is happening and to plan.

Knowing what to expect and what support is available means I can make informed choices.
I want to be treated as an individualTreating me, my carer and my family with dignity and respect, recognising my culture, characteristics, any physical health conditions and my life circumstances, means my care and support is inclusive, sensitive and responsive to my needs.
I want to be seen and heardHaving choice and control over my care means I, and those closest to me, have a good experience at end of life.

Compassion, sensitivity and understanding from health and care services, my family, friends, neighbours, school, workplace, and community, means I feel cared for and supported.

How will things be different in Suffolk and North East Essex

We will improve the identification of end of life for people with diverse long term conditions.We will encourage family-administered medication where people choose and it is safe, to prevent delays in obtaining pain relief at home.
We will ensure people at end of life are not moved from the setting of their choice unless necessary.We will co-produce awareness in communities of end of life and how to speak to people and their carers and families.
We will co-produce awareness and training to ensure all health and care environments understand end of life, communicate sensitively and provide compassionate care.We will support people to maintain their health and wellbeing before, while waiting for, during and after treatment to help them stay well.
We will co-produce a continuum of support from identification of end of life to bereavement for people at end of life and their chosen families.

Case Studies – how are we making progress across Suffolk & North East Essex

case study coming soon

case study coming soon

case study coming soon

case study coming soon

case study coming soon

Relevant plans and strategies

ICS

NHS Suffolk and North East Essex Integrated Care Board – Joint Forward Plan
Die Well

County

Alliance

Ipswich and East Suffolk
Alliance Delivery Plan

North East Essex 
Alliance Delivery Plan

West  Suffolk
Alliance Delivery Plan

NHS Trusts

East Suffolk and North Essex NHS Foundation Trust
End of life care strategy: Good end of life care for all

West Suffolk NHS Foundation Trust
Palliative and end of life care strategy

Essex Partnership University NHS Foundation Trust
Strategic Plan 2023-28

Last Updated on 27 February 2024

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