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People Living With Disabilities

Population Outcome: People Living with Disabilities in Suffolk and North East Essex Stay Well

The best care and quality of life for people with disabilities are essential if everyone in Suffolk and North East Essex is to live well. Early diagnosis of disabilities, effective care, and supporting people to achieve their potential enables people with disabilities and their carers and families to have a good quality of life.

Indicators

Barometer Measure

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Learning Disability Data

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Sensory Disability Data

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Physical Disability Data

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The Story Behind the Outcome

Lived Experience

Films

Ace Anglia

Sebastian Reeve

Papworth Trust

Colchester Gateway Club

Waiting for care

Accessing primary care

Invisible conditions

Adjustments for visual impairments

Reports

LD Patient, Carer and Staff Co-Design Event

Understanding Inequalities Co-Designing accessibility to health services in Mid and South Essex

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Pharmaceutical Services in Suffolk

Feedback Report - Healthwatch Suffolk

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Quotes

Listening to people and their carers

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Waiting for care

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Caring for the whole person

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Good quality physiotherapy

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Published Evidence

Medical vs social models of disability

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Disabled people - prejudice

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Choice and Control

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Cost of Living

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Impacts of disability

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Inequality and Disability

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Impact of hearing loss on people’s health and wellbeing

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Learning Disability and Inequality

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People with learning disabilities and/or autism – life expectancy

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People with autism – barriers in accessing healthcare

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Deprivation of liberty

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Further Reading

Further Information

Useful Organisations

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Our Ambition

What we know matters and why

What matters?Why?
I have adjustments to enable me to have a good quality of lifeAccess to equipment, adaptations, assistive technology and support with mobility and independence, means I can live independently and reach my full potential.
I receive high quality careTreatments, therapies and care provided by people trained in meeting my needs, given in the way that I wish, in my home and in my community, means I can be safe and live a full live.
I have information on my disability, care and living wellInformation given in the best format and language for me, on my rights and entitlements, and the support available, means I can access the right financial, practical, social and emotional support for me.

Advice on planning a family will help me to better manage pregnancy, childbirth and parenting.
I am treated as an individualTreating me, my carer and my family with dignity and respect, recognising my culture, characteristics and life circumstances, means my care and support is inclusive, sensitive and responsive to my needs.
I am seen and heardHaving choice and control over my care means I can organise my own life and do the things I want to, how and when I choose.

Communicating with me directly, using a facilitator or interpreter if needed, means I am fully included in decisions about me.

Being respected as the expert in my own health means I can access the right support for my needs.

How will things be different in Suffolk and North East Essex

We will embed the social model of disability in the ways that we work in health and care.We will think about mental health and wellbeing, not only physical health, in everything we do.
We will co-produce with people and carers, care and support plans owned by them and not any single organisation, that enable them to live a safe and full lifeWe will support people with multiple disabilities and /or health conditions and their carers and family to understand how their conditions and treatments interrelate and interact.
We will support disabled people to be a friend, a partner and/or a parent.We will encourage healthy workplaces and communities to better support disabled people.
We will combine budgets for individuals’ health, care and other services, wherever possible, to ensure people can access their funding more easily and more efficiently.We will ensure decisions in the best interests of those who may need deprivation of liberty (DoLS) are made promptly and reviewed regularly.
We will co-produce ways to ensure health and care settings are sensitive to the needs of people with sight and hearing loss, autism, learning disability and physical disability.We will support people to maintain their health and wellbeing before, while waiting for, during and after treatment to help them stay well and recover well.

Case Studies – how we’re making progress across Suffolk & North East Essex

Publish your case study here

Publish your case study here

Publish your case study here

Publish your case study here

Publish your case study here

Relevant plans and strategies

ICS

NHS Suffolk and North East Essex Integrated Care Board – Joint Forward Plan
Stay Well

County

Suffolk Learning Disability Partnership
Learning Disabilities Strategy 2021

Alliance

Ipswich and East Suffolk
Alliance Delivery Plan

North East Essex 
Alliance Delivery Plan

West  Suffolk
Alliance Delivery Plan

NHS Trusts

East Suffolk and North Essex NHS Foundation Trust
ESNEFT Strategy 2019-24

Essex Partnership University NHS Foundation Trust
Strategic Plan 2023-28

Last Updated on 6 February 2024

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